Does CBD Oil Help Dysautonomia


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I started taking CBD oil over a month ago. I was hoping I would sleep better with it and the effects I’ve had from it were unexpected. I support taking CBD. Dysautonomia includes POTS, neurocardiogenic syncope, and other disorders affecting the autonomic nervous system. Symptoms can be completely debilitating restricting patients from many day to day activities. Cannabis can be a helpful tool for managing symptoms of dysautonomia and POTS, but there are some things to be aware of.

This Is How My Body Reacted After Taking CBD Oil for 30+ Days

I started taking CBD oil over a month ago. I was hoping I would sleep better with it and the effects I’ve had from it were unexpected.

First, I’d like to start off saying everyone’s body reacts differently to it. And my experience may not be the same as yours. Plus I have two rare conditions that it has helped. I suffer from Vagovasal Syncope and Postural Orthostatic Tachycardia (POTS). My symptoms of these conditions include — I can have a sudden drop in blood pressure, feel faint and my heart rate increases periodically throughout the day. (Not everyone’s symptoms are the same with these conditions either)

Tetrahydrocannabinol (THC) is the main psychoactive cannabinoid found in cannabis. It causes the sensation of getting high that is associated with marijuana. However, unlike THC, CBD is not psychoactive. CBD (cannabidiol) is derived directly from the hemp plant and by itself it does not cause a high.

CBD oil is said to have the following benefits:

  • Pain Relief
  • Reduces Anxiety and Depression
  • Alleviates Cancer Related Symptoms Such As Nausea, Vomiting and Pain
  • Has Anti-Inflammatory Qualities
  • May Have Neuroprotective Properties Which Includes Reducing Seizures
  • Could Benefit Heart Health — Reduces High Blood Pressure
  • Antipsychotic Effects
  • Substance Abuse Treatment
  • Anti-Tumor Effects
  • Diabetes Prevention

Side effects include:

  • Diarrhea
  • Fatigue
  • Changes in appetite and weight

When I first started taking it I did not think my body could tolerate it at first and considered stopping on the second day. It gave me diarrhea for the first two-three days. I’m glad I stuck it out because it stopped on the third day. My body needed a little bit of time to adjust to it.

I have noticed that I am awake less during the night, which has been a issue for me for several years. I do track my sleep on my Fitbit app and I have gone from being awake two hours or more during the night to approximately an hour to an hour and a half now.

I now feel calmer and a lot less anxious than usual. While that is a bonus, if I take an extra dose on a stressful day, it tends to feel more like a downer. I notice I feel more down but it kind of numbs my emotions so that I don’t feel like crying but I feel a little melancholy. So I usually stick with one dose in the morning and only a dose in the evening if I am extra anxious or stressed.

The more unexpected effect was that my heart palpitations have almost disappeared. My condition was causing my heart to race up to 155 beats per minute many times a day. I found myself frequently grabbing my chest and feeling as though I was going to pass out. It’s a very scary feeling especially when it happens off and on every day. Before I started taking CBD oil, I was at the point where I was going to insist that my doctor give me another 24 hour heart rate monitor. I was certain something was seriously wrong with me. More than they knew with my underlying conditions.

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The most disappointing thing was when I told my doctor about taking CBD oil and the benefits I experienced. He shrugged it off and let me know he didn’t believe in CBD oil. He stated that because it hasn’t been properly regulated or tested that all the benefits that people talk about and write about are merely hearsay. I wish everyone in the medical field could get on the same page when it comes to CBD. In my opinion it all comes down to money and if you are a physician licensed to prescribe it then you are for it. The ones that are not seem to be more against it.

It definitely is not for everyone and does have side effects. But it has helped me in ways I did not expect and is definitely a benefit in my life.

POTS, Dysautonomia, and Medical Cannabis

When I tell people that I have a condition called POTS they often laugh and crack a joke about how it’s the perfectly named condition for me given my line of work and passion. I can’t help but chuckle and agree, but the reality of living with a condition like POTS is far from a laughing matter.

Before I was dealing with the symptoms myself I had no understanding of or awareness of the disorder or it’s umbrella category – dysautonomia. This was a bit of surprise to me considering I’d devoted my entire career to helping people with chronic illness. So how did I learn about it? By passing out cold in the bathroom and slicing my head open on a cabinet and toilet roll holder – more than once. What can I say, I like to learn things the hard way.

POTS stands for Postural Orthostatic Tachycardia Syndrome, a form of dysautonomia.

Let’s break those two down.

Dysautonomia refers to any disorder of the autonomic nervous system (ANS). The ANS controls important parts of our body that we don’t have to think about like blood vessels, stomach, intestines, liver, kidneys, heart, etc. Common forms of dysautonomia include POTS, neurocardiogenic syncope, multiple system atrophy, and diabetic autonomic neuropathy. While dysautonomia can develop for a range of reasons, conditions such as diabetes, MS, rheumatoid arthritis, Parkinson’s disease, and celiac disease can contribute to its onset.

Postural Orthostatic Tachycardia Syndrome is a form of orthostatic intolerance, meaning symptoms surface when standing from a reclining position and may be relieved upon lying back down. By definition POTS is a rapid increase in heart beat when standing (over 30bpm), but other symptoms can include dizziness, light headiness, fatigue/exhaustion, chest pain, brain fog, temperature deregulation, nausea, and other similar symptoms.

People with POTS have difficulty regulating blood flow and volume, meaning blood pressure and heart rate become unstable. For me this leads to episodes of Neurocardiogenic Syncope (NCS) in which I faint and loose consciousness. When I come to I experience extreme nausea, vomiting, exhaustion, and a general feeling of unwellness. Many individuals with dysautonomia have other related conditions like Ehlers-Danlos syndrome, gastroparesis, and Mast Cell Activation Syndrome (MCAS) that include symptoms of severe pain, stomach discomfort, difficulty with appetite, and allergic reactions. Many of these symptoms can be managed with cannabis, but there are also some things to be aware of.

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Using Medical Cannabis for Dysautonomia – Things to Know

Every single person will respond to cannabis differently. Patients with dysautonomia find that cannabis helps them immensely for some symptoms, but can exacerbate others. Being aware of these potential side effects is important to getting the most out of your cannabis routine.

THC can raise heart rate.
Individuals with POTS by definition have difficulty with tachycardia, or an elevated heart rate. THC can raise heart rate for the short-term, while lowering it over the long term. Some patients with POTS have difficulty bringing their heart rate back into a normal range – even requiring IV fluids and medications to do so. Some cannabis users are particularly sensitive to this increase in heart rate and finds it worsens these POTS symptoms. Other dysautonomia patients, like myself, actually benefit from this action – I medicate with THC prior to showering as my heart rate and BP tends to bottom out during and after showers. I can use it mindfully to help regulate my heart rate and BP when needed.

Cannabis can trigger orthostatic hypotension.
Cannabis contributes to vasodilation, which for many people with chronic illness is an added benefit (reduces blood pressure). Patients already prone to orthostatic hypotension (a severe drop in blood pressure when changing from sitting/laying to standing) may find these symptoms exacerbated with cannabis, especially with high doses. As orthostatic dysfunction is a hallmark feature of dysautonomia, patients should be mindful of this potential exacerbation when using cannabis and take necessary precautions.

Everyone responds differently.
I do well with THC – I can use it mindfully to raise my heart rate in situations where my dysautonomia causes it to drop, but products and strains dominant in CBD seem to exacerbate my symptoms and propensity towards syncope (more on this below). It’s important that dysautonomia patients are aware of both the positive and potential negative effects of cannabis so they can effectively monitor their symptoms and results.

Benefits are varied and affect multiple systems.
Cannabis has neuroprotective and anti-oxidant properties. There is some suggestion that cannabis may be healing for dysautonomia patients by addressing the underlying nerve damage. However, this is a theoretical assumption and beyond our current understanding of the plant. Most dysautonomia cannabis patients use it to manage day to day symptoms including nausea, fatigue, and pain. Cannabis may also be effective in managing inflammation and other symptoms associated with commonly co-morbid conditions. For example, patients with related MCAS my find cannabis topicals helpful for localized reactions and those with gastroparesis may find it helpful for appetite.

My Personal Experience

Cannabis has been life changing for me in so many ways, but when I started experiencing symptoms of dysautonomia, primarily fainting episodes, my world was thrown upside down. My cannabis physician and friend Dr. Scott Gebhardt suggested to me that my CBD intake could be contributing to my episodes and recommended I take it out of my routine to test if it could be contributing. I was less than willing to take on this experiment, so I initially stopped my oral doses for only a week. My dysautonomia symptoms weren’t improving and my pain was increasing so I called the ‘experiment’ a loss and started taking my oral CBD again.

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Months went by and my dysautonomia symptoms were continuing to worsen. I had continued to up my CBD intake over this time – both orally and via inhalation. Dr. Gebhardt was still in my ear about my CBD use dropping my blood pressure and contributing to my orthostatic episodes. I really really didn’t want to hear him.

Every time I faint or have a near fainting episode I feel a little piece of my independence slip away. Not wanting this anymore, I finally gave in and stopped my CBD intake all together – no oral and no CBD dominant strains or 1:1 via inhalation. I had to make adjustments to my overall routine to better manage my pain without the CBD, but to my surprise I went THREE MONTHS without having a fainting episode, something that was happening far more regularly prior to stopping. The first syncope episode I had after cutting out my CBD was when my air conditioner broke (heat is a major trigger). I’ve experienced a drastic reduction in orthostatic intolerance with almost no pre-syncopal episodes.

While I can’t deny that CBD was contributing to my dysautonomia symptoms, my endometriosis symptoms have really ramped up without it. I recently tried to add inhaled CBD dominant products back into my routine to work on this pain. Unfortunately, I was met with the full array of my dysautonomia symptoms – including fainting. Now that I have a better understanding of how cannabis affects my blood pressure and symptoms, I’m better able to manage both my dysautonomia and medical cannabis use.

I Have Dysautonomia and Want to Try Medical Cannabis – What Does This Mean for Me?

Choose a quality cannabis physician (who knows a thing or two about dysautonomia).
Despite all of my knowledge and experience with cannabis, I would have NEVER stopped taking my CBD and identified it as a trigger if it wasn’t for the outside perspective and guidance from my cannabis physician, Dr. Scott Gebhardt. Choose a physician who understands the plant and body, looks at the bigger picture, and is not just there to issue a certification. This will pay you back in ways you never imagined.

Be Mindful.
EVERY single patient is different. Journal your cannabis use and symptoms to figure out your personal patterns, reactions, and best products.

Take your BP and HR.
As patients with dysautonomia can have difficulty regulating blood pressure and heart rate, be mindful to take regular readings when starting a new cannabis routine.

Keep a positive mindset.
Cannabis is psychoactive and sensitive to set and setting. If you go into a situation expecting a negative reaction, you are more prone to have one. Try to be calm and collected before medicating.

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